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Resources for Lung Cancer Patients

Lung cancer organizations


  • The Alliance for Lung Cancer Advocacy, Support, and Education (ALCASE)
    • 1601 Lincoln Avenue
      P.O. Box 849
      Vancouver, WA 98666
      (800) 298-2436
      www.alcase.org
    A nonprofit organization dedicated to improving the quality of life of lung cancer patients. Among its many programs are a national information hot line, a list of community support groups, and educational materials including a lung cancer manual (available online or through the mail), resource guide, and quarterly newsletter.

  • Bonnie J. Addario Lung Cancer Foundation The first international collaborative entity of its kind, raising over $6 million for Lung Cancer research. BJALCF plans to become the global leader for Lung Cancer. Two years after BJALCF began, the Addario Lung Cancer Medical Institute (ALCMI) was created as a spin-off to connect the top thought leaders, scientists, researchers, and physicians worldwide to lead and empower patients toward better treatment options. Only immediate results-oriented projects or programs promising to catalyze progress through early detection, genetic testing, drug discovery and patient-focused outcomes are considered. The ultimate goal is to increase the inexcusably low survival rate of Lung Cancer by becoming the largest source of non-profit funding dedicated to turning Lung Cancer into a manageable chronic disease.

  • Lung Cancer Alliance The only national non-profit organization devoted solely to support and advocacy for all those living with or at risk for lung cancer.

  • National Lung Cancer Partnership Mission is to decrease deaths due to lung cancer and to help patients live longer and better through research, awareness and advocacy. To accomplish their goals the organization funds research to increase our understanding of how lung cancer starts and progresses, and how better to detect and treat it, provide education to physicians, allied health professionals, and patients and their families, and advocate for increases in lung cancer research funding by using all possible pathways.
    A group of women doctors and researchers interested in lung cancer got together in the fall of 2001 to discuss the emerging burden

Organizations providing general cancer information


  • American Cancer Society (ACS) National Office The American Cancer Society has many national and local programs to help cancer patients with travel, lodging, and emotional support. They also offer a 24-hour support line for both English- and Spanish-speaking cancer patients.

  • National Cancer Institute (NCI) A division of the US National Institutes of Health, the NCI has an enormous web site, numerous statements, booklets, and books about cancer treatment and care, and a hotline to help cancer patients with a variety of issues such as physician referrals. To learn of the newest treatments available, call (800) 4-CANCER and ask for the PDQ (Physicians Data Query) summary for lung cancer. These free statements explain the disease, state-of-the-art treatments, and ongoing clinical trials. There are two versions available: one for patients that uses simple language and contains no statistics and one for professionals that is technical, thorough, and includes citations to the scientific literature. The PDQ can also be found on the Internet at http://cancernet.nci.nih.gov/pdq.html.

Lung cancer Internet support groups

Internet support groups are free email discussions on specific topics of interest. Each subscriber receives a copy of an email sent by any member of the group. Some active groups generate dozens of messages a day. If you subscribe to the "digest" mode, you will receive one email containing all of the messages posted that day. Email discussion groups are an excellent way to connect with people in similar circumstances. Several Internet support groups discuss issues related to lung cancer.

  • ACOR (Association of Cancer Online Resources)
    Hosts dozens of cancer email discussion groups. Groups hosted by ACOR include LUNG-BAC for bronchoalveolar carcinoma, LUNG-SCLC for small-cell lung cancer; and LUNG-NSCLC for nonsmall-cell lung cancer. LUNG-ONC provides general support for all three and for mesothelioma. ACOR hosts dozens of other discussion groups including CANCER, CANCER-FATIGUE, CANCER-PAIN, and CANCER-PARENTS. ACOR offers a convenient automatic subscription feature for discussion mailing lists at www.acor.org.

Online Resources


  • CancerNet/
    http://cancernet.nci.nih.gov/
    An NCI sponsored comprehensive source of cancer information including types of cancer, treatment options, clinical trials, genetics, coping, support, resources, and cancer literature. CancerNet is one of the most comprehensive information sources for cancer patients on the Internet.
  • Clinical Trials
    http://clinicaltrials.gov
    A consumer friendly database sponsored by the National Institutes of Health that provides information on more than 4,000 federal and private medical studies involving patients at more than 47,000 locations nationwide.
  • Lung Cancer Online
    www.lungcanceronline.org
    This web site, constructed by Karen Parles, a nonsmoking lung cancer survivor, contains original information and pointers to all of the best sites on the Web for lung cancer information.
  • OncoLink
    Lung Cancer Info at Oncolink
    OncoLink was founded in 1994 by University of Pennsylvania cancer specialists to help cancer patients, families, health care professionals, and the general public get accurate cancer-related information at no charge. It contains general information, symptom management, psychosocial support and personal experiences, overviews of different types of cancer, answers to frequently asked questions, treatment options, and current news.
  • PubMed
    http://www.ncbi.nlm.nih.gov/PubMed
    The National Library of Medicine's free search service provides access to the 9 million citations in MEDLINE (with links to participating online journals), and other related databases. Also includes FAQs, news, and clinical alerts.

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