Resources for Lung Cancer Patients
Lung cancer organizations
- Bonnie J. Addario Lung Cancer Foundation
The first international collaborative entity of its kind, raising over
$6 million for Lung Cancer research. BJALCF plans to become the global
leader for Lung Cancer. Two years after BJALCF began, the Addario Lung
Cancer Medical Institute (ALCMI) was created as a spin-off to connect
the top thought leaders, scientists, researchers, and physicians worldwide
to lead and empower patients toward better treatment options. Only immediate
results-oriented projects or programs promising to catalyze progress
through early detection, genetic testing, drug discovery and patient-focused
outcomes are considered. The ultimate goal is to increase the inexcusably
low survival rate of Lung Cancer by becoming the largest source of non-profit
funding dedicated to turning Lung Cancer into a manageable chronic disease.
- Lung Cancer Alliance
The only national non-profit organization devoted solely to support
and advocacy for all those living with or at risk for lung cancer.
- National Lung Cancer Partnership
Mission is to decrease deaths due to lung cancer and to help patients
live longer and better through research, awareness and advocacy. To
accomplish their goals the organization funds research to increase our
understanding of how lung cancer starts and progresses, and how better
to detect and treat it, provide education to physicians, allied health
professionals, and patients and their families, and advocate for increases
in lung cancer research funding by using all possible pathways.
A group of women doctors and researchers interested in lung cancer got
together in the fall of 2001 to discuss the emerging burden
Organizations providing general cancer information
- American Cancer Society (ACS) National Office
The American Cancer Society has many national and local programs to
help cancer patients with travel, lodging, and emotional support. They
also offer a 24-hour support line for both English- and Spanish-speaking
- National Cancer Institute (NCI)
A division of the US National Institutes of Health, the NCI has an enormous
web site, numerous statements, booklets, and books about cancer treatment
and care, and a hotline to help cancer patients with a variety of issues
such as physician referrals. To learn of the newest treatments available,
call (800) 4-CANCER and ask for the PDQ (Physicians Data Query) summary
for lung cancer. These free statements explain the disease, state-of-the-art
treatments, and ongoing clinical trials. There are two versions available:
one for patients that uses simple language and contains no statistics
and one for professionals that is technical, thorough, and includes
citations to the scientific literature. The PDQ can also be found on
the Internet at http://cancernet.nci.nih.gov/pdq.html.
Lung cancer Internet support groups
Internet support groups are free email discussions on specific topics
of interest. Each subscriber receives a copy of an email sent by any member
of the group. Some active groups generate dozens of messages a day. If
you subscribe to the "digest" mode, you will receive one email
containing all of the messages posted that day. Email discussion groups
are an excellent way to connect with people in similar circumstances.
Several Internet support groups discuss issues related to lung cancer.
- ACOR (Association of Cancer Online Resources)
Hosts dozens of cancer
email discussion groups. Groups hosted by ACOR include LUNG-BAC for
bronchoalveolar carcinoma, LUNG-SCLC for small-cell lung cancer; and
LUNG-NSCLC for nonsmall-cell lung cancer. LUNG-ONC provides general
support for all three and for mesothelioma. ACOR hosts dozens of other
discussion groups including CANCER, CANCER-FATIGUE, CANCER-PAIN, and
CANCER-PARENTS. ACOR offers a convenient automatic subscription feature
for discussion mailing lists at
An NCI sponsored comprehensive source of cancer information including
types of cancer, treatment options, clinical trials, genetics, coping,
support, resources, and cancer literature. CancerNet is one of the most
comprehensive information sources for cancer patients on the Internet.
- Clinical Trials
A consumer friendly database sponsored by the National Institutes of
Health that provides information on more than 4,000 federal and private
medical studies involving patients at more than 47,000 locations nationwide.
Cancer Info at Oncolink
OncoLink was founded in 1994 by University of Pennsylvania cancer specialists
to help cancer patients, families, health care professionals, and the
general public get accurate cancer-related information at no charge.
It contains general information, symptom management, psychosocial support
and personal experiences, overviews of different types of cancer, answers
to frequently asked questions, treatment options, and current news.
The National Library of Medicine's free search service provides access
to the 9 million citations in MEDLINE (with links to participating online
journals), and other related databases. Also includes FAQs, news, and