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Resources for Lung Cancer Patients

Exposure to asbestos fibres has been recognised as an occupational health hazard since the early 1900s. Several epidemiological studies have associated exposure to asbestos with the development of lesions such as asbestos bodies in the sputum, pleural plaques, diffuse pleural thickening, asbestosis, carcinoma of the lung and larynx, gastrointestinal tumours, and diffuse mesothelioma of the pleura and peritoneum.

Lung cancer organizations

  • The Alliance for Lung Cancer Advocacy, Support, and Education (ALCASE)
    1601 Lincoln Avenue
    P.O. Box 849
    Vancouver, WA 98666
    (800) 298-2436
    www.alcase.org
    A nonprofit organization dedicated to improving the quality of life of lung cancer patients. Among its many programs are a national information hot line, a list of community support groups, and educational materials including a lung cancer manual (available online or through the mail), resource guide, and quarterly newsletter.
  • Bonnie J. Addario Lung Cancer Foundation
    601 4th Street Suite 215
    San Francisco, CA 94107
    (415) 357-1728
    http://www.lungcancerfoundation.org/
    The first international collaborative entity of its kind, raising over $6 million for Lung Cancer research. BJALCF plans to become the global leader for Lung Cancer. Two years after BJALCF began, the Addario Lung Cancer Medical Institute (ALCMI) was created as a spin-off to connect the top thought leaders, scientists, researchers, and physicians worldwide to lead and empower patients toward better treatment options. Only immediate results-oriented projects or programs promising to catalyze progress through early detection, genetic testing, drug discovery and patient-focused outcomes are considered. The ultimate goal is to increase the inexcusably low survival rate of Lung Cancer by becoming the largest source of non-profit funding dedicated to turning Lung Cancer into a manageable chronic disease

Organizations providing general cancer information

  • American Cancer Society (ACS) National Office
    1599 Clifton Road NE
    Atlanta, GA 30329-4251
    (800) ACS-2345
    http://www.cancer.org
    The American Cancer Society has many national and local programs to help cancer patients with travel, lodging, and emotional support. They also offer a 24-hour support line for both English- and Spanish-speaking cancer patients.
  • National Cancer Institute (NCI)
    Bethesda, MD 20892
    (800) 4-CANCER
    http://cancernet.nci.nih.gov
    A division of the US National Institutes of Health, the NCI has an enormous web site, numerous statements, booklets, and books about cancer treatment and care, and a hotline to help cancer patients with a variety of issues such as physician referrals. To learn of the newest treatments available, call (800) 4-CANCER and ask for the PDQ (Physicians Data Query) summary for lung cancer. These free statements explain the disease, state-of-the-art treatments, and ongoing clinical trials. There are two versions available: one for patients that uses simple language and contains no statistics and one for professionals that is technical, thorough, and includes citations to the scientific literature. The PDQ can also be found on the Internet at http://cancernet.nci.nih.gov/pdq.html.

Lung cancer Internet support groups

Internet support groups are free email discussions on specific topics of interest. Each subscriber receives a copy of an email sent by any member of the group. Some active groups generate dozens of messages a day. If you subscribe to the "digest" mode, you will receive one email containing all of the messages posted that day. Email discussion groups are an excellent way to connect with people in similar circumstances. Several Internet support groups discuss issues related to lung cancer.

  • ACOR (Association of Cancer Online Resources) hosts dozens of cancer email discussion groups. Groups hosted by ACOR include LUNG-BAC for bronchoalveolar carcinoma, LUNG-SCLC for small-cell lung cancer; and LUNG-NSCLC for nonsmall-cell lung cancer. LUNG-ONC provides general support for all three and for mesothelioma. ACOR hosts dozens of other discussion groups including CANCER, CANCER-FATIGUE, CANCER-PAIN, and CANCER-PARENTS. ACOR offers a convenient automatic subscription feature for discussion mailing lists at www.acor.org.

 

Books about lung cancer

Lung Cancer: Principles and Practice edited by Harvey I. Pass. Lippincott Williams & Wilkins Publishers, 2000.

Lung Cancer edited by Jack A. Roth and others. Blackwell Science Inc., 1998.

 

 

Online Resources

  • CancerNet
    http://cancernet.nci.nih.gov/
    An NCI sponsored comprehensive source of cancer information including types of cancer, treatment options, clinical trials, genetics, coping, support, resources, and cancer literature. CancerNet is one of the most comprehensive information sources for cancer patients on the Internet.

 

* Clinical Trials
http://clinicaltrials.gov
A consumer friendly database sponsored by the National Institutes of Health that provides information on more than 4,000 federal and private medical studies involving patients at more than 47,000 locations nationwide.

* Lung Cancer Online
www.lungcanceronline.org
This web site, constructed by Karen Parles, a nonsmoking lung cancer survivor, contains original information and pointers to all of the best sites on the Web for lung cancer information.

* Spanish Language
https://panvac.com/

* OncoLink
http://www.oncolink.org/disease/esophageal/
OncoLink was founded in 1994 by University of Pennsylvania cancer specialists to help cancer patients, families, health care professionals, and the general public get accurate cancer-related information at no charge. It contains general information, symptom management, psychosocial support and personal experiences, overviews of different types of cancer, answers to frequently asked questions, treatment options, and current news.

* PubMed
http://www.ncbi.nlm.nih.gov/PubMed
The National Library of Medicine's free search service provides access to the 9 million citations in MEDLINE (with links to participating online journals), and other related databases. Also includes FAQs, news, and clinical alerts.